We facilitate better cures for people living with a Rare or Complex Disease by enabling health care professionals to connect, collaborate and learn from each other.
We do all possible to protect patient privacy and have implemented following
1) In built Patient Consent forms
2) Clear case posting guidelines and Ability to flag any inappropriate content
Access to this digital platform is FREE for medical professionals
We are a group of people who are linked in different ways due to these Rare Diseases. We want to capitalize on this energy, passion and value driven from personal life experiences to make meaningful difference in lives of people living with rare disease
This project is inspired by the personal experience of parents (originally from Pakistan but living in Belgium) where their son born with Anorectal malformations was medically treated very well by Prof Miserez (UZ Leuven Hospital). Parents in collaboration with Prof Miserez and APSP (association of pediatric surgeons of Pakistan) launched this initiative aiming to connect health care professionals to facilitate better diagnose and treatment outcomes for people living with Anorectal malformations and other rare disease.
Initial focus is on Aneorectal Malformations and Hirschprung Diseases.
Over the past few years, our platform has made significant strides in the field of rare disease diagnosis and treatment. Here are some of our achievements so far
The monthly International Colorectal Web Meetings are hosted and archived by The Hendren Project....
External Link:
https://www.hendrenproject.org/case/about-international-colorectal-web-meetings
CureforU special joint case discussion with AsaF Germany and APSP Pakistan
External Link:
https://www.cureforu.com/subscriptions/new
You can access it on the web for free.
Only Health care professionals (doctors / Peds surgeons) upon signing up / registering and accepting “terms and conditions” can have access to this web portal.
Only registered and verified healthcare professionals, and / or Admin (on behalf of healthcare professional) can post the medical case on this web portal.
Information (name, country, institutional email address, hospital name) provided during registration would be used to validate and verify the account. Only once an account is validated and verified then Healthcare professional can have full access to web portal.